Welcome to the Haemoglobinopathy Registry website.

This website is a service provided by the European Haemoglobinopathy Registry (EHR) for its members, haemoglobinopathy patients and health care professionals.

• Current information about the Registry.
  
  
• Information about acute and community services available for patients who attend NHS Trusts that are members of the EHR.
  
  
• Resources to assist with the clinical management of sickle cell disease patients.
  
  
• A secure members’ section where up to date project information and tools can be downloaded for use including patient data collection proformas, patient information sheets and patient consent forms.
  
  
• An invitation to consultants caring for haemoglobinopathy patients to join the Registry.
  
  

If this registry interests you please read the 'The Registry' homepage to know more about us and further details on how to join.

You can also link to pages explaining more about the haemoglobinopathies, the Managed Clinical Network, patient services available in the North West London Sector and other useful links.

Director:	Professor Sally C Davies
EHR Manager:	Annette Gilmore
IT Consultant:	Sameer J Patankar